Process

Phase I - COMPLETED

  • Collected background information
  • Developed best practices

Phase II ~ Oct 2008

  • Preliminary analysis of where and how advocates are involved at NCI and across NCI funded activities
  • Develop initiatives to address barriers and missed opportunities

Phase III ~ March ‘09

  • Develop implementation plans for each initiative
  • Write Final report
Public Input

Written input will be accepted and considered throughout the process. Please address your written statement to:

James Hadley
Advocacy Program Manager
Office of Advocacy Relations, NCI
Building 31, Room 10A28
31 Center Drive, MSC 2580
Bethesda, MD 20892-2580

or in an email to James Hadley at nciadvocacywg@mail.nih.gov.  Notice will also be given on this website of public teleconferences where input can be provided before the final report is submitted.

Meeting Summaries

Working Group meeting summaries will be posted here after they are finalized. Click on the meeting date(s) below to view the summary of the meeting you are interested in.

March 5, 2008

January 30, 2008

December 12, 2007

November 11, 2007

Membership

Members represent various interests in the research advocacy community. Members include advocates who work with Cancer Centers, advocates who work in SPORE grants, research advocates in the community, extramural investigators, and NCI program staff.

Members were appointed by NCI leadership. NCI encourages all advocates to funnel any input they may have to members.

Current Working Group Members

1. Ms. Kelly Cotter Working Group Chair, DCLG Member
2. Col. (Ret.) James Williams, Jr. Advocate Member at Large
3. Ms. Paula Kim Biorepositories and Biospecimen Research Program Advocate
4. Ms. Peggy Devine Consumer Advocates in Research and Related Activities Member
5. Dr. Richard Gorlick Consumer Advocates in Research and Related Activities Member
6. Ms. Vernal Branch Advocate Member at Large
7. Ms. Jane Reese-Coulbourne Advocate Member at Large
8. Ms. Nancy Roach Clinical Trials Cooperative Group Advocate
9. Ms. Francine Huckaby NCI-Designated Cancer Centers Advocate
10. Dr. Paul A. Bunn, Jr. University of Colorado at Denver and Health Sciences Center
11. Dr. H. Kim Lyerly Duke University Cancer Center
12. Ms. Jane Condon Specialized Programs of Research Excellence Program Advocate
13. Ms. Deborah Collyar Specialized Programs of Research Excellence Program Advocate
14. Ms. Cindy Geoghegan Specialized Programs of Research Excellence Program Advocate
15. Dr. John Minna Chair SPORE Executive Committee, University of Texas Southwestern Medical Center
16. Dr. C. Kent Osborne SPORE Principal Investigator, Baylor Medical School Cancer Center
17. Dr. L. Michelle Bennett Center for Cancer Research, NCI Program Staff
18. Dr. Jane Daye Center to Reduce Cancer Health Disparities, NCI Program Staff
19. Dr. LeeAnn Jensen Coordinating Center for Clinical Trials, NCI Program Staff
20. Dr. R. Allan Mufson Division of Cancer Biology, NCI Program Staff
21. Dr. Brenda Edwards Division of Cancer Control and Population Sciences, NCI Program Staff
22. Dr. Judith Swan* Division of Cancer Control and Population Sciences, NCI Program Staff
23. Dr. Sudhir Srivastava Division of Cancer Prevention, NCI Program Staff
24. Ms. Andrea Denicoff Division of Cancer Treatment and Diagnosis, NCI Program Staff
25. Dr. Ted Trimble* Division of Cancer Treatment and Diagnosis, NCI Program Staff
26. Dr. Shamala Srinivas Division of Extramural Activities, NCI Program Staff
27. Dr. Jennifer Loud Division of Epidemiology and Genetics, NCI Program Staff
28. Ms. Shannon Bell Office of Advocacy Relations, NCI Program Staff
29. Mr. James Hadley Office of Advocacy Relations, NCI Program Staff
30. Dr. Kim Myers Office of Biorepositories and Biospecimen Research, NCI Program Staff
31. Dr. Julia Rowland Office of Cancer Survivorship, NCI Program Staff
32. Dr. Nancy Breen* Office of Cancer Survivorship, NCI Program Staff
33. Ms. Nina Ghanem Office of Communications and Education, NCI Program Staff
34. Dr. Jeff White Office of Complementary and Alternative Medicine, NCI Program Staff
35. Ms. Susan Erickson Office of Government and Congressional Relations, NCI Program Staff
36. Ms. Jeanette Contreras* Office of Government and Congressional Relations, NCI Program Staff
37. Dr. Margaret Ames Office of Science Planning and Assessment, NCI Program Staff
38. Dr. Lisa Stevens* Office of Science Planning and Assessment, NCI Program Staff
39. Ms. Karen Creamer Coalition of Cancer Cooperative Groups, Partner Organization
40. Ms. Margo Michaels Education Network to Advance Cancer Clinical Trials, Partner Organization
41. Dr. Syed Ahmed National Institutes of Health Council of Public Representatives, Partner Organization
42. Ms. Ann-Gel Palermo* National Institutes of Health Council of Public Representatives, Partner Organization
* Indicates Alternate  

Members of the ARWG in Phase I

Ms. Kelly Cotter, ARWG Chair, DCLG member
Col. (Ret.) James Williams, Jr., DCLG member
Ms. Paula Kim, Biospecimens and Biorepositories program
Ms. Peggy Devine, CARRA member
Dr. Richard Gorlick, CARRA member
Ms. Vernal Branch, Member-at-Large
Ms. Nancy Roach, Cooperative Group advocate
Ms. Francine Huckaby, Cancer Center advocate
Mr. Gerald (Buddy) Leo, Cancer Center advocate
Dr. Paul A. Bunn, Jr., Cancer Center Director
Dr. H. Kim Lyerly, Cancer Center Director
Dr. Kirby I. Bland, SPORE Principal Investigator
Ms. Deborah Collyar, SPORE advocate
Ms. Cindy Geoghegan, SPORE advocate
Ms. Lori Monroe, SPORE advocate
Dr. John Minna, SPORE Executive Committee Chair
Dr. Shamala Srinivas, NCI Program Staff
Dr. Jaye Viner, NCI Program Staff
Ms. Shannon Bell, Office of Advocacy Relations
Mr. James Hadley, Office of Advocacy Relations