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SPECIAL PUBLIC COMMENT NOW OPEN - November 2 - November 30, 2009
Advocates in Research Working Group Final Recommendations
The NCI Advocates in Research Working Group has completed its final recommendations on the most effective ways to engage individual advocates in NCI activities. Now is the time for you to view the recommendations and provide input and public comment.
The recommendations focus on:
1. Recruitment of individual advocates for NCI activities
2. Assessment and matching of individual advocates with NCI activities
3. Training and coaching of advocates and staff to prepare for the research advocacy engagement
4. Facilitating the engagement process
5. Evaluating and tracking advocacy engagement
6. Retaining research advocates and NCI staff and promoting successful engagements
All comments on the ARWG recommendations must be received by November 30, 2009 in order to be considered. Email your comments to nciadvocacywg@mail.nih.gov or send by mail to Shannon Bell, Office of Advocacy Relations, 31 Center Drive, Room 10A28, Bethesda, MD 20892-2580.
Tuesday, November 17, 2009, from 1:30-2:30 p.m. (EST)
Advocates in Research Working Group Recommendations - Public Comment Webinar
Online/Webinar Access: https://www.mymeetings.com/nc/join.php?i=PW2109160&p=ARWG&t=c
Audio/Phone Access: 1-888-323-9895 Passcode: ARWG
Join the webinar to provide public comment or provide your comments by email or regular mail as indicated above by November 30, 2009.
Written input will be accepted and considered throughout the process. Please address your written statement to:
Shannon Bell, Director
Office of Advocacy Relations, NCI
Building 31, Room 10A28
31 Center Drive, MSC 2580
Bethesda, MD 20892-2580
or in an email to Shannon Bell at nciadvocacywg@mail.nih.gov.
Introduction ~ September 2007
- Finalize ARWG charge
- Membership formation
Phase I ~ March 2008
- Analyze background information
- Develop early findings and ideal model
Phase II ~ Early 2009
- Preliminary analysis of where and how advocates are involved at NCI and across NCI funded activities
- Develop initiatives to address barriers and missed opportunities
Phase III
- Develop implementation plans for each initiative ~ March 2009
- Write final report ~ October 2009
Working Group meeting summaries will be posted here after they are finalized. Click on the meeting date(s) below to view the summary of the meeting you are interested in.
March 5, 2008
January 30, 2008
December 12, 2007
November 11, 2007
Members represent various interests in the research advocacy community. Members include advocates who work with Cancer Centers, advocates who work in SPORE grants, research advocates in the community, extramural investigators, and NCI program staff.
Members were appointed by NCI leadership. NCI encourages all advocates to funnel any input they may have to members.
Current Working Group Members
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1.
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Ms. Kelly Cotter
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Working Group Chair, DCLG Member
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2.
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Col. (Ret.) James Williams, Jr.
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Advocate Member at Large
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3.
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Ms. Paula Kim
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Biorepositories and Biospecimen Research Program Advocate
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4.
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Ms. Peggy Devine
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Consumer Advocates in Research and Related Activities Member
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5.
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Dr. Richard Gorlick
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Consumer Advocates in Research and Related Activities Member
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6.
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Ms. Vernal Branch
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Advocate Member at Large
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7.
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Ms. Jane Reese-Coulbourne
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Advocate Member at Large
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8.
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Ms. Nancy Roach
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Clinical Trials Cooperative Group Advocate
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9.
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Ms. Francine Huckaby
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NCI-Designated Cancer Centers Advocate
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10.
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Dr. Paul A. Bunn, Jr.
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University of Colorado at Denver and Health Sciences Center
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11.
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Dr. H. Kim Lyerly
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Duke University Cancer Center
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12.
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Ms. Jane Condon
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Specialized Programs of Research Excellence Program Advocate
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13.
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Ms. Deborah Collyar
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Specialized Programs of Research Excellence Program Advocate
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14.
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Ms. Cindy Geoghegan
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Specialized Programs of Research Excellence Program Advocate
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15.
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Dr. John Minna
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Chair SPORE Executive Committee, University of Texas Southwestern Medical Center
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16.
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Dr. L. Michelle Bennett
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Center for Cancer Research, NCI Program Staff
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17.
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Ms. Jane Daye
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Center to Reduce Cancer Health Disparities, NCI Program Staff
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18.
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Ms. Jean Lynn
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Coordinating Center for Clinical Trials, NCI Program Staff
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19.
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Ms. Erin Baney
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Division of Cancer Biology, NCI Program Staff
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20.
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Dr. Brenda Edwards
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Division of Cancer Control and Population Sciences, NCI Program Staff
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21.
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Dr. Judith Swan*
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Division of Cancer Control and Population Sciences, NCI Program Staff
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22.
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Dr. Sudhir Srivastava
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Division of Cancer Prevention, NCI Program Staff
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23.
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Ms. Andrea Denicoff
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Division of Cancer Treatment and Diagnosis, NCI Program Staff
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24.
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Dr. Ted Trimble*
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Division of Cancer Treatment and Diagnosis, NCI Program Staff
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25.
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Dr. Shamala Srinivas
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Division of Extramural Activities, NCI Program Staff
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26
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Dr. Jennifer Loud
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Division of Epidemiology and Genetics, NCI Program Staff
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27.
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Ms. Shannon Bell
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Office of Advocacy Relations, NCI Program Staff
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28.
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Dr. Kimberly Myers
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Office of Biorepositories and Biospecimen Research, NCI Program Staff
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29.
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Dr. Julia Rowland
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Office of Cancer Survivorship, NCI Program Staff
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30.
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Dr. Nancy Breen*
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Applied Research Program, Division of Cancer Control and Population Sciences, NCI Program Staff
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31.
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Ms. Nina Ghanem
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Office of Communications and Education, NCI Program Staff
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32
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Dr. Jeff White
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Office of Complementary and Alternative Medicine, NCI Program Staff
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33
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Ms. Susan Erickson
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Office of Government and Congressional Relations, NCI Program Staff
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34
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Ms. Jeanette Contreras*
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Office of Government and Congressional Relations, NCI Program Staff
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35
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Dr. Margaret Ames
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Office of Science Planning and Assessment, NCI Program Staff
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36
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Dr. Lisa Stevens*
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Office of Science Planning and Assessment, NCI Program Staff
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37
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Ms. Karen Creamer
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Coalition of Cancer Cooperative Groups, Partner Organization
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38
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Ms. Margo Michaels
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Education Network to Advance Cancer Clinical Trials, Partner Organization
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39
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Dr. Syed Ahmed
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National Institutes of Health Council of Public Representatives, Partner Organization
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40.
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Ms. Ann-Gel Palermo*
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National Institutes of Health Council of Public Representatives, Partner Organization
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41.
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Ms. Jane Perlmutter
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Advocate At Large
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Indicates Alternate |
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Members of the ARWG in Phase I
Ms. Kelly Cotter, ARWG Chair, DCLG member
Col. (Ret.) James Williams, Jr., DCLG member
Ms. Paula Kim, Biospecimens and Biorepositories program
Ms. Peggy Devine, CARRA member
Dr. Richard Gorlick, CARRA member
Ms. Vernal Branch, Member-at-Large
Ms. Nancy Roach, Cooperative Group advocate
Ms. Francine Huckaby, Cancer Center advocate
Mr. Gerald (Buddy) Leo, Cancer Center advocate
Dr. Paul A. Bunn, Jr., Cancer Center Director
Dr. H. Kim Lyerly, Cancer Center Director
Dr. Kirby I. Bland, SPORE Principal Investigator
Ms. Deborah Collyar, SPORE advocate
Ms. Cindy Geoghegan, SPORE advocate
Ms. Lori Monroe, SPORE advocate
Dr. John Minna, SPORE Executive Committee Chair
Dr. Shamala Srinivas, NCI Program Staff
Dr. Jaye Viner, NCI Program Staff
Ms. Shannon Bell, Office of Advocacy Relations
Mr. James Hadley, Office of Advocacy Relations
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